Tag Archive | health

Noel? No … Hell!

The holiday season is well underway now – concerts, gatherings, staff parties at many establishments. Excited children, dancing lights, Santa at the local mall. Stores with groaning shelves, carolers in red velvet, cheerful music wafting through all available airspace. Trees glowing in corners; menorahs gleaming on tables or in windows.

Indeed, a festive and celebratory month.

Except when it’s not. Some folks view this time of year with dread and even despair. They may be battling illness, whether or not it is obvious to the casual observer. They may be reeling from the impact of a recent loss within their circle of loved ones. They may be financially pushed to that cold stone wall which offers no doorway out. They might be struggling to sustain a relationship, or mourning a breakup they may not have wanted. Every balm for their wounds will turn to salt, and the salt to tears.

They could be estranged from family members, unemployed and unable to find work, recently-moved into an unfamiliar place. There might not even be a home they can claim, other than a doorstep, a bench, a temporary shelter. This is the season when the homeless feel the cold. This is the season when fires – meant for heating houses – end up destroying those houses instead. And this is the season when children go without the gifts their classmates enjoy, because these gifts cannot be provided.

And so the people who stand outside endless, glittering windows must confront the joyous displays, the songs, the endless “Ho Ho Ho” messages, with a certain bitterness at the brutality of fate. These are people within whom no candles are lighted. Broken people, burdened people – voiceless, isolated. People with little hope of relief and little expectation of the simple kindnesses many of us take for granted. Afraid to ask anyone for support; reluctant to seek help for themselves, although they may do it for their children. Too proud to come forward and search for a loving face in the crowd. Terrified of being judged, and knowing full well that, indeed, judgment is being passed upon them.

No shared Facebook meme will make a difference to those who most need comfort. No “post on your wall for an hour” will help them. No “I say Merry Christmas” preaching will breach their sadness. Many won’t even have computer access. Others will be craving a personal communication that never comes. Some might even retreat from the internet – or at least from social media – until this whole glitzy, glorious, glaring time is over and the bells have rung its death. Then they’ll return, quietly and without explanation. For them, the Christmas weeks are their signal to disappear.

Joy to the World … but the world can shrink to a bubble for some. It can blow away, carrying with it all the rainbow swirls that shine so brightly. Then the night becomes silent, indeed.

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At Life’s Summit

From this point, a person can look down and back. All the braided paths – so far below – are worn like ribbons in the stone and clay. The man or woman stands at a peak, buffeted by colder winds than either has ever known. Eyelashes blink themselves free of ice, then blink again. No matter that it is spring – or summer – or whenever else they find themselves up here. This chill is no respecter of time or season.

ALS – At Life’s Summit.

If anybody were to think ahead and idly imagine the worst among physical afflictions that burden humanity, surely this one would top the mountain. It is pitiless; its grip is implacable. It holds its chosen men and women firm on the pinnacle, with nowhere left to go but down.

Yet the view remains remarkable. The air is clean and the noises of earth diminish, with their currents of anger, despair, grief and hatred. Up here, it’s between the individual and his or her own will. The body fails but the mind endures. Hands that no longer possess the strength to write a single syllable are replaced by a power of another kind – the power that moves even this mountain; even this weight. Muscles have nothing to do with such a force. If it comes from any identifiable source, that source is the soul itself.

And it doesn’t make any difference whether he once threw the fastest pitch in the league or told a thousand pilots they were cleared for takeoff; whether she sketched a whirling sky or played a Bach partita that wakened God Himself. Whether they stood in front of elementary-school classes or stitched the seams in baseballs. It’s all irrelevant to the man or woman poised on the apex, confronting a destiny that will avalanche every former thing down the slopes and into the past.

The first to go might be the legs with their capacity to walk upright, toe-tap to a fiddler, wander along a beach as the foam fills in each footprint. Or it could be the formation of words, the easy flow of language like a waterfall, clear and coherent. The brain knows what it wants to speak; the throat or tongue or lips refuse to acknowledge its wishes. A man’s roar of laughter is muted; a woman’s cheerful giggle falls silent. A glass of wine turns to an instrument of strangulation. A satisfying meal becomes merely the memory of that meal, distilled into something the body will accept. A steak morsel, a lobster fragment, a strawberry slice, are held in the mouth like promises that can no longer be kept – tasted, then taken away. They are but ghosts from a feast remembered.

Yes, the world shrinks and constricts. It allows small room for resistance. This disease shows few mercies to those whom it seeks to partner. There are no bargains. The odds tilt sideways until every card is in the hands of the enemy, and its opponent’s hands can hold nothing at all. Not even empty air.

Yet the man remains; the woman holds on. They discover new ways to communicate, plan, and dream. They don’t abandon themselves, nor do they expect the rest of us to give up on them. We can’t always control what changes us, or deflect its momentum, not even a little. They already know this. We stand before them in awe, wondering whether we could face their fate and remain unbroken by it – brilliant and brave and somehow ageless. Printed immortal on the firmament, like the tracery of a comet that has passed but not entirely vanished.

For they are resolute, even when there are no voices left. As we watch, they quietly rise and shake the stars.

David Tate with Cash

My husband, David, diagnosed with ALS in 2014 …